It is vital that the experiences of people with complex health and social needs and their caregivers inform the work of the National Center and the direction of the complex care field. Since our launch in 2016, the National Center has purposefully engaged consumer leaders from organizations across the country through our National Consumer Scholars program. Consumers are also represented on the National Center’s Advisory Committee, where they act as strategic advisors.
In Camden, NJ, local consumers and community leaders form the Community Advisory Committee (CAC) of the Camden Coalition, which houses the National Center. CAC members are represented on the Camden Coalition’s Board of Trustees as well as in the National Consumer Scholars program.
National Consumer Scholars
National Consumer Scholars have first-hand experience living with or caring for someone with complex health and social needs, experience with systems-level transformation, and leadership involvement with an organization that provides complex care or advocacy.
Over the course of their engagement with us, Consumer Scholars take part in leadership development and peer-to-peer learning activities, and play an active role at the annual Putting Care at the Center conference with the goal of bringing lessons back to their local communities. Consumer Scholars also work with National Center and Camden Coalition staff to develop and inform the field of complex care. They help lead field-building efforts like the complex care core competencies working group, develop and present on webinars and workshops, and more.
The National Consumer Scholars program is made possible with financial support from the Robert Wood Johnson Foundation (RWJF) and through support from our National Center network and partnerships with organizations like Community Catalyst and Commonwealth Care Alliance.
To learn more about the National Consumer Scholars program and other leadership opportunities, please reach out to our team at firstname.lastname@example.org.
Meet the 2021-2022 National Consumer Scholar cohort in the video below:
Amplify: A consumer voices bureau
Does your organization want to strengthen its work by incorporating consumer voices in your events, conferences, program design, evaluation projects, or policy initiatives? Amplify, our consumer voices bureau, was created to increase opportunities for bringing the voices and perspectives of people with lived experience of complex health and social needs into organizations’ work. Head to our Amplify page to learn more about the bureau, browse consumer profiles, and request a speaker or collaborator.
Hear from the Consumer Scholars
- Exploring consumer engagement experiences: A research project co-led by the National Consumer Scholars, by Evelyne Kane & Danielle Hodges of the Camden Coalition, and 2019-2020 National Consumer Scholars Olivia Richard, Stephanie Burdick, and Suzette Shaw
On our blog:
- Conducting consumer-led research to explore consumer engagement experiences, by Evelyne Kane & Danielle Hodges of the Camden Coalition, and 2019-2020 National Consumer Scholars Olivia Richard, Stephanie Burdick, and Suzette Shaw
- How people with complex health and social needs can become advocates for change, by Mia Matthews, President/Executive Director, CHANs Promise Foundation; 2019-2020 National Consumer Scholar
- Principles for the complex care workforce: Reflections on developing core competencies, by Sara Reid, Consumer Board Member, Boston Healthcare for the Homeless; Lived Experience Vice Chair, complex care core competencies working group; 2019-2020 National Consumer Scholar
- Find updates about our National Consumer Scholars’ and Amplifiers’ work across the country here.